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UID:20250808T000026EDT-7769E2GD53@132.216.98.100
DTSTAMP:20250808T040026Z
DESCRIPTION:'Muscular Dystrophy Canada (MDC) is pleased to present a webina
 r on patient registries and participating in a Duchenne muscular dystrophy
  (DMD) registry. This webinar will shed light on life with DMD: How do we 
 measure what matters to those living with DMD?\n\nBy the end of this 1 hou
 r webinar\, we hope to have answered the following questions:\n\n1. What i
 s a patient registry and why is it important to collect meaningful measure
 s\n\n2. What data is collected by the CNDR\n\n3. What is the International
  Classification of Functioning\, Disability and Health framework (ICF)\n\n
 4. How is the data collected for people living with DMD used by the CNDR\n
 \n5. How can you contribute to shaping the DMD registry?'\n
DTSTART:20231031T160000Z
DTEND:20231031T170000Z
LOCATION:Online (Zoom)
SUMMARY:Building a national Duchenne muscular dystrophy patient registry in
  Canada
URL:/infoneuro/channels/event/building-national-duchen
 ne-muscular-dystrophy-patient-registry-canada-352292
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